Wednesday, July 3, 2013

Week #16

I am pleased to say that the last week and our day in clinic yesterday were both completely uneventful! Brayden and daddy caught a short nap during the first hour of fluids and then Brayden got his IV Benadryl.......
Surprisingly enough, Brayden stayed awake for the next three hours (although he was swaying forwards and backwards from the Benadryl). For whatever reason he simply refused to nap. We got our schedule for the next month, and found out that our next MRI is on July 29th. Upcoming MRI's make my stomach hurt, probably because I am afraid of what the MRI will show, but it is what it is.
We were in and out of clinic in just under 5 hours, and I am pleased to say that Dr G gave us the green light to go on our trip as long as Brayden is eating and drinking enough. This momma is officially in vacation mode and it feels amazing. Brayden and I have ZERO appointments or commitments (other than the things we want to do) for the next 14 days!! It really is a huge weight lifted off my shoulders knowing that all I have to do is love/play with my little hero for the next 2 weeks.
We are armed with all the proper tools to take Brayden on his first real vacation. Pain meds, nausea meds, constipation meds, our handbook with all of Braydens recent information, and an emergency kit for access, cultures and antibiotics should he spike a temp at any point during our adventure. There is reputable children's hospital in Pensacola, and Dr G says they have a neuro oncologist as well. If Brayden spikes a temp we will have to take him to the ER, and as long as his ANC is above 500 we would not have to be admitted. If the ANC is less than 500, and his temp is greater than 101.5 we would have to be admitted, no exceptions. I am desperately hoping we won't have any problems, and that Brayden will actually get to go 14 days with no needle sticks!! It would be terrible to get admitted during our trip, but I am willing to take that chance. I guess taking that chance goes along with trying to keep the balance between keeping Brayden safe while also allowing him to live his short life to the fullest. That being said, I will post photos and updates on the Standing with Brayden facebook during our adventure! Have a good and safe 4th of July everyone!

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