Thursday, October 10, 2013

Hello Fall (Week #30)

 I am pleased to say that Brayden behaved over the weekend and spent an uneventful weekend with his maw maw and paw paw. He had a boys day on Monday with his daddy, cousin, and the dog while I had an all day class at work. As you can see from the following photo, daddy had his hands full, but did awesome as usual. He even managed to get both kids to the barber so Brayden could get a haircut.

Photo: Just a day with the boys! Julie Wiggans Williams Jillian Wiggans Carter

Teusday we went to clinic for labs, and Brayden looks great! His ANC was 710, platelets were 120, and his hemoglobin was nearly 10. His spots are all healed, although some of them left some pretty nasty battle scars that I am hoping will fade as time goes on. He also got his flu shot and I was so proud of him because he didn't cry at all. How you can give a 21 month old a shot and get no tears in return amazes me, but I am so grateful for his good nature because it makes each day of this journey monumentally easier for this momma.

After leaving clinic we headed over to get a bail of hay and some fall décor for the yard and then went to maw maws for lunch. Bret and I spent the afternoon decorating for fall while Brayden and his cousin napped with the windows open so we could hear them. I almost forgot how much I love this time of year!

Brayden also had therapy yesterday and Laura helped him decorate this.
While decorating this he was able to identify it as a "kitty" after lots of reinforcement from Laura. Then he walked with his PT and worked on bending down while holding on to the refrigerator for stabilization so he could pick up a little toy school bus off the floor. We rolled that bus around the kitchen for a bit and he was able to verbalize "bus". Two new words in 1 hour? It looks like his speech is coming along pretty well and we truly just needed to be more patient with him.

On a different note I am pleased to say that the gait trainer has left the building and will be heading over to meet the next family who needs it. I had so many mixed emotions the day that contraption showed up at our door, but it helped Brayden learn to walk independently and for that I am eternally grateful no matter how many marks it left on the walls in our home. Braydens first independent steps were a long time coming and now we are just waiting on him to be able to stand himself up independently. In true Brayden fashion, it looks as if he will not actually "pull" up and our PT thinks he will just stand up from a squat one day..... I am hoping that day comes very soon because he is getting increasingly upset when he falls down as he can't get himself back up and while I think it hurts his feelings more than anything, that doesn't make the blood curling screams any easier to hear.

Today we did some shopping this morning, and Brayden is taking his nap now. Today at lunch Brayden finally decided to use his fork instead of using it as a toy. He has a lot of difficulty stabbing the food, but if you help him get the food on his fork he can do it from there! It amazes me how much he is changing everyday.

We are planning on having a low key rest of the week as Brayden appears to be coming down with something. Over the last couple of days he has developed a cough and a runny nose, and we are hoping it will pass without requiring a trip to the emergency room for a fever. Providing Brayden is feeling better on Monday we are planning on going to the pumpkin patch to get some pictures and to find the perfect pumpkin for Bret and I to carve for Brayden. We didn't carve him one last year because we decided that he wouldn't understand, and I desperately wish I could go back and do it so I would have the memory, but I can't. That being said, we won't be making that mistake again this year.


1 comment:

  1. So happy Brayden is doing well. There are so many people thinking and praying about him, you, and Bret. I love you little cousin and I am so grateful I was able to meet you and I think of you everyday...Everytime I see a picture or video of your smiling face I cannot help but have a huge smile of my own. You have no idea how much you have changed my life and so many others. ~Love your cousin Amanda~