Thursday, October 2, 2014

Weeks #8 & #9

This has been a big week for Brayden so far! He did have a respiratory virus over the weekend that caused him to vomit several times..... With that being said, a huge thanks goes out to mawmaw and pawpaw for cuddling my sweet boy all weekend and changing his (and their) sheets as well as giving baths in the middle of the night. It certainly makes going to work easier knowing that he is in good hands!
He had an amazing time at Monday night football and we met so many kind people during that experience. Brayden got his ball signed by the chiefs punter Dustin Colquitt, and he got to go out on the field for the coin toss! He seemed quite interested in KC Wolf, and while I don't think he understood how cool this activity really was, I do think he had a good time! A huge thank you also goes out to Charlie for her help with all of this as well as Chiefs organization! Everyone we came into contact with Monday evening was genuinely kind, and we are grateful to have had this experience with Brayden.
On Tuesday we had a little bit of a rough day at clinic, which may have to do with Monday night since Brayden was up WAY past his normal bedtime, but it was worth it! For some unknown reason it took his labs longer than normal to result, and he needed to get his IV antibiotic that he takes monthly. He was medicated prior to the infusion with oral nausea meds, but for some reason they didn't work and he vomited shortly after the infusion began. That meant we had to stop the infusion, get orders for IV nausea meds, and then give them. He also got his flu shot while in clinic and did awesome. We spent a total of 4 hours in clinic which is longer than normal, and it just wasn't our day. During our time in clinic Brayden was watching the bubble guppies, and at some point he pointed to the TV and said "He has a brain tumor". I was absolutely speechless that he said that and it absolutely broke my heart. Even today I still don't really know what to say about it......
On Wednesday he slept very late and went to school. He normally LOVES going to school but when I dropped his off he actually cried. I am chalking that up to his flu shot and hoping that he was just in general not feeling well because when I picked him up they said he did great as usual. Today he went back to school and seems to be back to his old self. He got his school pictures taken today and I am anxious to get the proofs back. His teacher said he smiled and said "cheese" so I am hoping they got some good pictures of him.
This weekend is Braydens annual sand volleyball tournament at Centerline in Blue Springs and registration starts at 10AM! We have some great raffle items this year and Brayden will be there to say hello too, so come by and see us even if your not interested in playing. If you want to play but don't have a team I am sure we have someone you could play with. Hope to see you this weekend, and as always thank you so much for reading about and praying for Brayden!!!

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